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patricialaydorsey

Patricia Lay-Dorsey Detroit-based photographer AKA Grandma Techno. 2017 Rauschenberg Residency artist - More on @patricialaydorseycollages and www.patricialaydorsey.com http://www.vogue.it/news/vogue-arte/2017/12/26/patricia-lay-dorsey-collages-from-the-rauschenberg-residency/
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1,741 following

@patricialaydorsey

Patricia Lay-Dorsey
I am so happy with the progress i'm making in my healing but i don't know how much longer i can keep up this fast pace! since being discharged from the inpatient physical rehabilitation center a week ago, my life has been filled with scheduling and keeping appointments. most days i have appointments with my home health care professionals, sometimes more than one. i also have appointments this week and next week with construction companies to get estimates on converting our downstairs bathroom into one that is wheelchair accessible with a roll-in shower. in addition to my usual appointments, next monday i'll be seeing a urologist who specializes in patients with ms. i'm hoping to get rid of the foley catheter and find out what's been going on with my bladder. i would very much like to start driving again but first i have to find time to sign up for a drivers license rehabilitation service so i can be evaluated, trained and get my wheelchair accessible van outfitted with brake and accelerator hand controls. i sure hope things settle down soon! photo by emily swank @fannypackfilms.
24 335 12 hours ago

@patricialaydorsey

Patricia Lay-Dorsey
There are certain individuals without whom i would not be able to be make the progress i am making. one of the most significant is my carpenter david wenner @rusticrabbitco. now i have to preface this by telling you that david is an artist with wood. check out his instagram account and you will see what i mean. but he is also one of the sweetest human beings on the planet. david will do whatever is needed to help someone like me. first david came the wednesday afternoon a week ago that i was discharged from the inpatient rehab center to help me prepare to be home again. he assembled and bolted into the floor the couch cane i needed to make safe transfers between my new reclining lift chair and my scooter. that day he also installed safety bars on our downstairs toilet and removed the door to the upstairs toilet, a door that had always been in my way! these jobs had been recommended by my occupational therapist betty and physical therapist liz who had made a home visit before i was discharged in order to see what changes needed to be made in our house. david came back today and spent three hours doing a long list of jobs to make my house even more safe and accessible. these jobs included bolting another couch cane so i will be able to get in and out of my bed upstairs, installing three grab bars in the tile walls of my upstairs shower (pictured here) and one grab bar beside the downstairs toilet. he also adapted the metal threshold going into the upstairs bathroom so my small upstairs scooter could back into it safely. when i write this list, it doesn't sound like much, but the reality was that each of these jobs was quite complex and had more details to consider than i could have imagined. david said he enjoyed it because he always likes having to use his brain to figure things out. well, he certainly did that today! david says we are like family to him and he will do anything we need. i know he means it because, as my mother used to say, "the proof is in the pudding!" love you, david.❤️
8 138 17 hours ago

@patricialaydorsey

Patricia Lay-Dorsey
There are certain individuals without whom i would not be able to be make the progress i am making. one of the most significant is my carpenter david wenner @rusticrabbitco. now i have to preface this by telling you that david is an artist with wood. check out his instagram account and you will see what i mean. but he is also one of the sweetest human beings on the planet. david will do whatever is needed to help someone like me. first david came the wednesday afternoon a week ago that i was discharged from the inpatient rehab center to help me prepare to be home again. he assembled and bolted into the floor the couch cane i needed to make safe transfers between my new reclining lift chair and my scooter. that day he also installed safety bars on our downstairs toilet and removed the door to the upstairs toilet, a door that had always been in my way! these jobs had been recommended by my occupational therapist betty and physical therapist liz who had made a home visit before i was discharged in order to see what changes needed to be made in our house. david came back today and spent three hours doing a long list of jobs to make my house even more safe and accessible. these jobs included bolting another couch cane so i will be able to get in and out of my bed upstairs (pictured here), installing three grab bars in the tile walls of my upstairs shower and one grab bar beside the downstairs toilet. he also adapted the metal threshold going into the upstairs bathroom so my small upstairs scooter could back into it safely. when i write this list, it doesn't sound like much, but the reality was that each of these jobs was quite complex and had more details to consider than i could have imagined. david said he enjoyed it because he always likes having to use his brain to figure things out. well, he certainly did that today! david says we are like family to him and he will do anything we need. i know he means it because, as my mother used to say, "the proof is in the pudding!" love you, david.❤️
7 111 17 hours ago

@patricialaydorsey

Patricia Lay-Dorsey
This picture may not seem remarkable to you, but it sure is to me. this is the first time i can remember being able to pull my legs up and sit in this position. it wasn't that i could pull them up without help - the help of my right hand - but i did it and it feels fantastic!!!
33 301 Yesterday

@patricialaydorsey

Patricia Lay-Dorsey
I would hope that everyone could have at least one friend like my friend, emily swank @fannypackfilms . some of you may remember emily from @movementdetroit last may when she was following me around filming everything grandma techno did and said during that electronic music festival i love so much. emily is a filmmaker who lives with her husband jeff in denver but comes back to metro detroit every so often to visit her family. this time she was also in ann arbor for a photo shoot. but she made time to come visit me today. we shared our stories, both of which were filled with lots of changes and for emily, lots of new work as a filmmaker. emily had been following my saga here on instagram and brought up the gofundme idea to help me with my medical expenses, in particular my being able to drive again & have a roll-in shower in my house. she offered to take a video and help me put up the page if i wanted. i'm not quite ready to go public with it, but now we do have the video for my gofundme homepage when the time is right. thank you, dearest emily. i love you! selfie by @fannypackfilms #gofundme #emilyswank #fannypackfilms #grandmatechno #friends
9 181 Yesterday

@patricialaydorsey

Patricia Lay-Dorsey
This morning was my first working appointment with t.j., my home health care physical therapist. i am so impressed! it is obvious that his years of experience, especially with patients with ms, pays off. we worked primarily on range of motion because my hamstrings and leg muscles have gotten quite tight. we worked with me sitting in a chair and lying on the bed. in both cases it was a combination of t.j. moving my legs, and having me move them on my own. i could see evidence of greater strength and range of motion as the session went on. t.j. said, "we're looking for improvement every day!" he and i are very much on the same page. i was also struck by his comment, "it is surprising how much you can still do after 30 years with ms...especially with no medical intervention." my response was, "maybe no medical intervention is part of why i do as well as i do!" t.j. nodded his head and laughed.
4 106 Yesterday

@patricialaydorsey

Patricia Lay-Dorsey
Eddie at the piano tonight while i sing "the way you look tonight."
68 254 2 days ago

@patricialaydorsey

Patricia Lay-Dorsey
Continuing on with eddie playing the piano and my singing "my funny valentine."
16 139 2 days ago

@patricialaydorsey

Patricia Lay-Dorsey
Tonight with eddie at the piano while i sing the introduction to "my funny valentine."
12 116 2 days ago

@patricialaydorsey

Patricia Lay-Dorsey
One of my favorite things about our house - especially this winter - is the sunlight that pours in the front window. yes, i take my vitamin d pills but there's nothing like the real thing to perk you up!
11 196 2 days ago

@patricialaydorsey

Patricia Lay-Dorsey
Eddie's job is never done. yesterday he was my vitamin d pill picker-upper!
22 272 2 days ago

@patricialaydorsey

Patricia Lay-Dorsey
I want to thank each one of you who has supported me through these unexpected - and unprecedented, in my life anyway - adventures in two hospitals and an inpatient physical rehab center. i have posted countless photos and written journal entries here on instagram sharing everything that was happening in my day-to-day life and my raw feelings about it. instead of my feeling alone, you surrounded me with love, companionship and understanding. so much has been going on that i have been unable to respond to your comments. every bit of energy i had was going into the often overwhelming task of dealing with what i was facing. just writing my ig entries was all i could manage. but now i want to say that i read every word you wrote - often repeatedly - and cannot imagine where i would be if you had not been at my side. today i have turned a corner and come to a place of confidence and trust that i am on the road to recovery and will indeed regain my strength and mobility. not because of what i am doing on my own but because of the help i have received and will continue to receive from the health care professionals i have been privileged to meet, and from you, my beloved instagram community. please accept this message as an expression of my sincere gratitude for being there for me when i needed you the most. i love you.
110 489 3 days ago

@patricialaydorsey

Patricia Lay-Dorsey
And the magic continues! this afternoon i saw my home health care physical therapist tj for the first time and omg this fellow is just what the doctor ordered! been doing this work for 20 years and during that time he said he has probably worked with 50-60 ms patients. i could tell by his questions and what he said in response to what he saw with my body and its abilities, that he knows exactly what to do with me. because i am a high functioning ms patient who only lost my abilities recently, he considers our work together a priority. tj is going to arrange with his supervisor to see me three times a week for the first three weeks and then twice a week from then on. he also arranged his schedule so that our appointments will be at 9 am on monday, wednesday and saturday because he knows i am strongest in the morning. how did i ever get so lucky???
18 125 3 days ago

@patricialaydorsey

Patricia Lay-Dorsey
It is now almost 4 am saturday morning and i am posting a new rauschenberg residency collage that i have just completed. it felt so right to place bob's print beside a heron that may have been the ancestor of the one that modeled for him. i can't begin to tell you how happy it makes me to be creating art again. i think this is the first time since i got the flu on december 26 that i have had the energy and inclination to get up in the middle of the night and play with photography. this says to me that i am becoming myself again after the strangeness of being hospitalized and all that entailed. i'm even listening to the same cd on my headphone that i would listen to as i worked in my studio last year at the rauschenberg residency. it brings back such sweet memories of late nights spent by myself in bob's main studio, creating art and carrying on conversations with that amazing man whose body may have died in 2008 but whose artistic spirit permeated every inch of the 20 acres of land on captiva island, florida where he had lived and worked for 40 years. how grateful i am that my health crisis happened this year instead of last. ✨thank goodness ✨i was able to participate in that life-changing artists residency.
21 153 4 days ago

@patricialaydorsey

Patricia Lay-Dorsey
Happy chinese new year! the year of the dog. by the way, this is bob seger who is being custom-trained by paws with a cause to be an assistance dog. thanks to my nurse andrea, i met him on valentine's day just as i was being discharged from the st. john inpatient physical rehab center.
15 315 4 days ago

@patricialaydorsey

Patricia Lay-Dorsey
It has happened again! the perfect person has come into my life and i just know we are going to work wonderfully well together. my home health care occupational therapist, karin, came today and we hit it off immediately. not only that, it was apparent that she really knows her business and has a lot of experience working with persons with multiple sclerosis. i had expected this first meeting to simply be an evaluation but karin jumped right in and started giving me exercises and tips on how to get the most out of my fingers and hands. she will be coming twice a week and i already have homework for our tuesday morning appointment! karin asked all the right questions and even wanted to see the upstairs where my bed and tub are located, our downstairs bathroom that we will be converting to a roll-in shower, and my reclining lift chair in the blue room. in addition to her years as a home health care ot, karin previously worked at the providence hospital inpatient rehab center. and it looks like medicare will pay for us to work together for eight weeks. i feel like i have hit the jackpot!
7 169 4 days ago

@patricialaydorsey

Patricia Lay-Dorsey
#repost @newtownactionalliance with @get_repost ・・・ remember the victims who were murdered in cold blood with a weapon of war. remember their names and honor them with thoughts and prayers, but also action to #endgunviolence #stonemandouglas #floridaschoolshooting #gunreformnow jaime guttenberg martin duque aaron feis chris hixon gina montalto luke hoyer carmen schentrup meadow pollack joaquin oliver nicholas dworet peter wang alyssa alhadeff alaina petty cara loughran alex schachter scott beigel #parklandstrong
12 185 5 days ago

@patricialaydorsey

Patricia Lay-Dorsey
I watch the olympic athletes giving it their all and can relate to their efforts because i am also giving it my all. i may not stand on the podium with a medal around my neck, but i win something greater than that: my healing and future independence. it may be that, while watching the olympics on tv, i work on the hand exercises my occupational therapist betty gave me before my discharge yesterday from the st. john inpatient physical rehabilitation center in detroit. or it may be that i use my adapted leg lifter to put on my yellow socks before transferring from my scooter for my second night of sleeping in my new reclining lift chair. whatever it is, this is the only gold i need to bring home! #mopla #instagramjam2018
6 192 5 days ago

@patricialaydorsey

Patricia Lay-Dorsey
My energy level here at home is similar to what it was in the rehab center: by about 3 pm i'm ready for a rest. the delightful thing is that the olympic coverage on tv starts at 3 pm, so i am happy reclining in my lift chair and watching the olympics (pictured here). tough life, eh? by the way, everything is going along swimmingly in terms of our adjustment to my changed condition. i was so comfortable in the reclining chair last night that i even managed to get up in the middle of the night, go to the commode and get back into the chair with no problems. i slept great! i had needed help from eddie to get everything ready before i went to sleep, but i have pretty much worked things out on my own since then. as i said earlier, it just takes practice. eddie is adjusting well to his "duties," the primary one being his position as the official drainer of my catheter bag. he seems to have the hang of it and manages fine. through trial and error, i've been learning how to treat henrietta - my catheter bag - with the care and respect she deserves. eddie hammered a hook into the wooden bookcase beside my reclining lift chair so henrietta can have her own special place to rest. because her hose is taped to my left leg, she needs to be on my left side. it works perfectly. we may be old, eddie and i, but i'm finding we are much more adaptable than one might expect. we're learning to take each thing as it comes and deal with it. so far so good! #mopla #instagramjam2018
21 250 5 days ago

@patricialaydorsey

Patricia Lay-Dorsey
And so it begins... joy, a nurse from reverence home health was just out to do the initial evaluation and paperwork so i can receive their services. she's recommending that a nurse come twice a week, a home health care aide come to give me a shower once a week, and the physical and occupational therapists work out their own schedules. i asked how long my home health care would continue, and she said they will determine that according to my needs. by the way, joy was just helping out this morning so she will not be my regular nurse, but on monday i will meet the nurse i'll be working with. all of this is 100% paid for by medicare. thank goodness for medicare! i can't begin to imagine what my medical bills must be right now after three weeks of hospitalization, countless exams by specialist doctors, iv antibiotics for five days, ultrasounds and an mri, an ambulance/ems, physical and occupational therapists, nursing care, etc. at least i had no procedures or surgeries. i can certainly see the risk for younger people that something medically catastrophic like this could cause them to lose their homes, and even go into bankruptcy. it is so unfair! obamacare certainly helps but not enough. what we need is what so many countries have and that is government-financed nationalized health coverage. on a personal note, what i am beginning to realize is that my primary job for the next few months is going to be taking care of my body and its ever-changing needs. yes, i will continue to take iphone pictures and share my story on instagram, but other photo projects? they're going to have to be on the back burner. at least for now. #mopla #instagramjam2018
29 165 5 days ago