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Search result for #adultcongenitalheartdefect

@ashlee__28

ashlee__28
With only 10 mores days until the #chd walk in nyc, i’m so glad i accepted the challenge of participating in the congenital heart walk to raise funds for research and programs dedicated to fighting congenital heart disease. myself and others are 1 out of 100 who are diagnosed with chd.
link in bio. • • • •
the congenital heart walk is a national fundraising event series benefitting the adult congenital heart association (acha) and the children’s heart foundation (chf). we walk to honor and remember the millions who have been impacted by congenital heart disease (chd).
the congenital heart walk shows the nation how a team of inspired individuals can join together to make a difference. funds raised will support the missions of both national nonprofit organizations who are uniting to fight chd! since 2010, chw has raised more than $10 million in total.
• • • •
do you want to make a difference?
link in bio
2 40 2 weeks ago

@megsfixedheartx3

megsfixedheartx3
I couldn't think of a better way to celebrate world heart day. (the ocean's out there! 😍🏖)
1 37 3 weeks ago

@homefrontessentials

homefrontessentials
When you have a heart condition, ekg lines are a must! i do everything with my whole half heart! 😂 💓 #hypoplasticrightheart #adultcongenitalheartdefect #wormheart @doterra #doterradream2018 #milspouse #dream
8 33 3 weeks ago

@themaygoon

themaygoon
I love this photo i took last night. it doesn’t really look like me, but it captures what i’ve been through in the last nine months. two invasive surgeries, one minor procedure, four ct scans, and maintaining full-time engineering work in between (edit: and i don’t want to go into detail on the six years since my aortic bypass failed). to quote @indefinablenothing, i look weary but tough. and that’s how i feel! maybe i let my guard down and showed my thirty-eight year-long struggle with heart disease? regardless, i feel beautiful and older than the world around me. .
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#selfie
#nomakeup
#heartdisease
#congenitalheartdefect
#congenitalheartdisease
#adultcongenitalheartdefect
#adultcongenitalheartdisease
#achd
#thoracicoutletsyndrome
#imstillalive
#survivor
#thisiswhatanengineerlookslike
55 156 last month

@ash_d_hall

ash_d_hall
0 20 last month

@the_heart_effect

the_heart_effect
What does this 👆👆👆👆 kind of care look like? what will the future of adult chd care be like? visit our fb page (hearteffectpchf) for a link to watch leading adult cardiologist dr. wayne franklin talk about this live this friday 8/17 at 12noon! #adultcongenitalheartdisease #adultcongenitalheartdefect #adultcongenitalheartdefects #chd #chdawareness #heartdefects #hearthealth #futureofchd #thehearteffect #phoenixchildrenshospital
0 29 August 2018

@heidi_hearted

heidi_hearted
4 years ago today i had my 2nd (and hopefully last) open-heart surgery. previous to that surgery i’d had a stroke, discovered the cause was an atrial septal defect (asd), learned my mitral valve was regurgitating (was it really?), had my first open-heart surgery (i thought that would be my only one), and spent 2 years, 9 months, and 11 days with my vena cava partially sewed up. i have stories (good, bad, and ugly) and i have scars (physical and psychological). i am forever grateful for my family and friends who stood by me during all of that none sense. life feels brand new! .
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#chdpatient #adultcongenitalheartdefect #strokesurvivor #openheartsurgery #atrialseptaldefect #mitralvalverepair #sewedupinferiorvenacava #twoopenheartsurgeries #achd #iamoknow #lifecontinues #openheartsurgeryanniversary #2ndopenheartsurgeryanniversary #stillkickin #iwilltellyouaboutprednisoneanothertime #💔 #❤️
2 16 August 2018

@tomocojmb

tomocojmb
お昼ご飯 ・牛肉の甘辛煮
・卵焼き
・エリンギと胡瓜のサラダ
・南京と玉ねぎのお味噌汁
・西瓜
・甘味半分、生クリームの代わりにヨーグルトを混ぜ込んだニューヨークチーズケーキ

ニューヨークと聞くとニューヨークへ余計に行きたくなる。

負荷検査無事終了です。
思っていたよりとても疲れました。念の為休みを取っておいてよかったです。
検査結果は来週の定期診察時に確認です。
食事も翠野菜過多にならない様気をつけたので今度こそpt-inr(凝固数値)が2迄いってますように

#お昼ごはん #おうちごはん #チーズケーキ #ニューヨークチーズケーキ #ニューヨーク行きたい #ニューヨークいつ行こうか #ワーファリン #lunch #lunchtime #cheesecake #newyorkcheesecake #lighttaste #iwannagony #adultcongenitalheartdefect #congenitalheartdisease #warfarin
1 30 July 2018

@tessandted

tessandted
Ekg. echocardiogram. six times to get a normal bp reading. many tears shed over the course of a 90-minute appointment as the bottled-up anxiety of the last month leading to this appointment was released. an amazing cardiac fellow who listened to me, and hugged me, and told me i wasn’t crazy.
❤️
diagnosis? in the words of my (slightly woo-woo) beloved cardiologist, a heart that’s giving me space to enjoy the sun, flowers, and life (e.g. perfect working order). prescription for one hour of daily self-care, along with some form of daily exercise, not to be missed under any circumstance. (he actually said “not to be f****d with,” but i’m trying to keep it clean here for the ‘gramming children.) also, lighter workload, and less doing for others whenever and wherever possible. because, basically, stress is a badass mf, and can unleash a can of whoopass if you’re not careful. message. heard. biannual cardiology check up complete. see you in 2020. ❤️❤️❤️
#asdrepair #vsdrepair #adultcongenitalheartdefect #healthanxiety #brighamandwomens #childrenshospitalboston #heartsurgery #hearthealth #openheartsurgery
46 126 June 2018

@prime.perform

prime.perform
❤️congenital heart disease ❤️ show your support🤘 @aranaudo_28 ・・・
july 6, 2017 i underwent my 2nd successful open heart surgery at only 24. i decided to show my support. i recently accepted the challenge of participating in the congenital heart walk to raise funds for research and programs dedicated to fighting congenital heart disease—the most common birth defect in the united states. the congenital heart walk benefits two great national organizations, the adult congenital heart association and the children's heart foundation.
if you are interested in joining this supoort you can click on the link at the bottom or in my bio either in joining my team to walk, donate, or simply just educate yourselves and others. http://events.congenitalheartwalk.org/goto/ranaudo
link is in bio as well #educateyourself #educateyourselves #findacure #congenitalheartdefect #congenitalheartdisease #adultcongenitalheartdisease #adultcongenitalheartdefect #advocate #advocates #congenitalheartwalk #newyorkcity #newyork #stayhealthy #staystrong #positivevibes @acha_heart @congenitalheartwalk @thechphc #fairfieldct #westportct #bridgeportct #monroect #newtownct #trumbullct #milfordct
0 29 June 2018

@pace.cdc

pace.cdc
#repost @ladykatamelia with @get_repost
・・・
amazing @pace.cdc retreat! looking forward to our next #pace event! check out our 2018/2019 pace schedule! hope to see you all soon! #cdc #heart #cardiac #adult #transision #family #friends #community #malibu #camping #theatre ##sweenytodd #la #oc #campdelcorazon #pace #pace2018 #pacecdc #pacebewithyou #adultcongenitalheartdefect #chdsurvivor
0 39 June 2018

@ahmet.arnaz

ahmet.arnaz
Minimal invasive surgery is an excellent approach for the treatment of a wide range of cardiovascular disease that previously required sternotomy. the notable benefits of minimal invasive surgery to patients include less postoperative pain, fewer operative and post-operative major complications, shortened hospital stay, faster recovery times, less scarring, less stress on the immune system, smaller incision, and for some procedures reduced operating time and reduced costs. our patient underwent open heart surgery via minimal invasive thoracotomy at the same time for #adultcongenitalheartdefect #mitralvalveregurgitation #tricuspidvalveregurgitation #atrioventricularcanaldefect #atrialfibrillation #pulmonaryhypertension successfully #mitralvalverepair #tricuspidvalverepair #atrioventricularcanaldefectrepair #crioablation
0 158 May 2018

@pace.cdc

pace.cdc
1 41 May 2018