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Search result for #adultcongenitalheartdefect
Just a forewarning this is going to be a long post but i am going to try my best to give you a concise synopsis. i’m posting this mural again because the last time i did i wasn’t very open with y’all and i didn’t tell y’all what it means to me. it is just something that i don’t really like to talk about. i’m a little nervous to let you in and it’s not that i want my instagram to seem like my life is perfect but these little squares make me feel normal. i’ve given it a lot of thought and think it’s time you know what i have been dealing with. so about the mural, i promise i’m not stalling. i actually still don’t know what it means to the artist but i am going to tell you what it means to me. for the past almost two years i have been mourning my health just like you mourn the death of a loved one. in 2016 i was diagnosed with a heart and lung condition aka atrial septal defect(asd) and pulmonary arterial hypertension(pah). i’ve been told by the cardiologist worst case scenario would be in the future [i’m hoping for a miracle and it never will be necessary] that i will need a heart and lung transplant. if you look at me you would never be able to tell that something was wrong with me especially not that unless i have gone up a flight of stairs or an incline then you would probably think i was 90 yrs old lol. i wanted to share with y’all what i am going through because it makes it easier for me to really share what i am going through if that makes sense. i also wanted to share with y’all because i know the power of social media and maybe just maybe you know someone that has the condition i was diagnosed with. i hope this changes nothing between us because the last thing i want is for you to feel sorry for me. (that is the main reason why i had not said anything before) i would rather you pray for me because i believe in the power of prayer! i hope it doesn’t bother you that from time to time i will be giving y’all updates on either a post or instastories. believe me when i tell you that i love y’all very much and i appreciate you more💞
102 504 last month
Spread the word! we want to get some great applicants!!! #acha #volunteer #youngpro #fun #chd #adultcongenitalheartdefect #heart #heartdefect
4 3 December 2014
Volunteering at the adult congenital heart association stand at the nbc4 health and fitness expo. come stop by and say hi!
26 136 last month
1 15 last month
Gisele who?! had a few tests today for the ol' ticker which required three wardrobe changes. gown #1 didn't close in the back, floral frock #2 draped like a cape, and look #3 was a combo of the first and a stripped number that prevented me from flashing folks walking to x-ray...ha! amid the fun though was some bummer news that my heart needs a little more proactive maintenance, but nothing we haven't known was coming. fortunate to have done so well for nearly 30 years, sooo, c'est la vie! 💓 #hospitalgownsfordays #liveyourlife #stayingpositive #adultcongenitalheartdefect #transposition #transpositionofthegreatarteries #tga #zipperclub #scrippsclinic
1 15 May 2015
Chd.
defect or disease??
what do you say?? i’ve had so many discussions with people on this topic and as personal as the choice is from the feedback that i’ve got seems to be a clear preference with chd patients
if you’re a chd patient or you have someone in your life with chd what do you say?
#congenitalheartdefect #congenitalheartdisease #openheartsurgery #chd #achd #adultcongenitalheartdefect #chdblogger #chdawareness #chdaware #tga #thebhf #somervillefoundation #heartwarrior #whgbrandrep2018
2 13 February 2018

@brittstj

brittstj
Buns for b***y day 💁🏽‍♀️ exhausted from this workout today. pushed possibly too hard?? is that even a thing?! lol unfortunately with myself and those living with heart disease and a congenital heart defect, it definitely is. tested myself today and so proud of my body and my heart for keeping up with my strength and goals. i may have needed longer rest periods today, but that’s ok. because now, i have every reason to be snuggling the beautiful b**e attached to that chubby little hand you see lol .
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#fitmom #fitmama #girlswholift #momswholift #trainlikeagirl #girlswithmuscles #mondayvibes #happymonday #rockingthebuns #bunsforbooty #bootyday #momofthree #momofgirls #gymshark #gymsharkwomen #momsofinstagram #ig_motherhood #adultcongenitalheartdefect #congenitalheartdisease #iamstrongerthanmydefect
6 69 3 weeks ago

@chd_hearts_and_carolina_moons

chd_hearts_and_carolina_moons
Check my bio for the link to my blog/vlog. i also have a chd support group for the carolinas that i run (with a friend). if you fit into that catagory, leave me s comment. #chdadvocacy #chd #tof #conqueringmychd #congenitalheartdefect #congenitalheartdefectawareness #tetralogyoffallot #awareness #blog #vlog #healingheartsunderthecarolinamoon #advocacy #advocacymatters #iam1in100 #adultchd #adultcongenitalheartdefect #adultcongenitalheartassociation
0 7 last month

@lindsayalano

lindsayalano
Fun fact: before dr. b was my cardiologist in hawaii, he was doing his residency/fellowship at rady’s children hospital, which is the hospital i grew up in and received most of my adult cardiac care. i remember meeting dr. b in san diego many years ago. it was comforting, moving to hawaii, knowing that dr. b studied under my san diego cardiologist. small world, right?!?!
-
anyways....today was my last cardiac clinic appointment before we make the big move to the east coast. it sure has been a wild ride with my health here but i’m thankful to be stable enough to transfer to a world renowned facility. -
mahalo dr. b for the cardiac care you gave me! thank you for always taking the time to hear my thoughts and concerns. thank you for always including my opinions and wants in creating different care plans. maybe, our paths will cross again. until next time 🤙🏼
10 97 last month

@mcaprint

mcaprint
Focus on inner peace ... it can take you far in life ...#innerpeace #thankyourbody #thankful❤️ #chdfighter #momof2 #adultcongenitalheartdefect #beachlife #atpeacewithmyself #itsaworkinprogress
0 13 last month

@grapepairings

grapepairings
Volunteering at the adult congenital heart association stand at the nbc4 health and fitness expo. come stop by and say hi!
26 136 last month

@agirlfrmtx

agirlfrmtx
Just a forewarning this is going to be a long post but i am going to try my best to give you a concise synopsis. i’m posting this mural again because the last time i did i wasn’t very open with y’all and i didn’t tell y’all what it means to me. it is just something that i don’t really like to talk about. i’m a little nervous to let you in and it’s not that i want my instagram to seem like my life is perfect but these little squares make me feel normal. i’ve given it a lot of thought and think it’s time you know what i have been dealing with. so about the mural, i promise i’m not stalling. i actually still don’t know what it means to the artist but i am going to tell you what it means to me. for the past almost two years i have been mourning my health just like you mourn the death of a loved one. in 2016 i was diagnosed with a heart and lung condition aka atrial septal defect(asd) and pulmonary arterial hypertension(pah). i’ve been told by the cardiologist worst case scenario would be in the future [i’m hoping for a miracle and it never will be necessary] that i will need a heart and lung transplant. if you look at me you would never be able to tell that something was wrong with me especially not that unless i have gone up a flight of stairs or an incline then you would probably think i was 90 yrs old lol. i wanted to share with y’all what i am going through because it makes it easier for me to really share what i am going through if that makes sense. i also wanted to share with y’all because i know the power of social media and maybe just maybe you know someone that has the condition i was diagnosed with. i hope this changes nothing between us because the last thing i want is for you to feel sorry for me. (that is the main reason why i had not said anything before) i would rather you pray for me because i believe in the power of prayer! i hope it doesn’t bother you that from time to time i will be giving y’all updates on either a post or instastories. believe me when i tell you that i love y’all very much and i appreciate you more💞
102 504 last month

@nicolahessionkent

nicolahessionkent
First night out wearing nice clothes since my surgery. scar is very on show. clocked a few people double-taking. it is what it is, without this scar my life wouldn’t last long. #openheartsurgery #openheart #scar #scarsaretattooswithbetterstories #scarsarebeautiful #adultcongenitalheartdefect #heartdefect #surgery #fixedheart
10 29 last month