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Search result for #eds

@sicklykangaroo

sicklykangaroo
Just got diagnosed with fibromyalgia and eds type 3 #eds #chronicillness #chronicpain
0 0 16 minutes ago

@lara.bloom

lara.bloom
Does anyone else feel like this at the end of the day??!! i would like approximately five more hours a day please universe... i have spent the past few years saying after the conference it will slow down, or after that project we can breathe, but the thing is the more awareness we raise and the harder we fight our battle the more there is to do. i wouldn’t change it for the world but i would like just a few more hours a day to fit it all in... i’m exhausted and sometimes feel like i have nothing else to give, but then i’ll get an email or have a phone call or meeting that refuels me with excitement and energy with the potential to change the lives of all of us living with eds and related disorders, and that is why despite me looking defeated you can see i’m still smiling. change is happening. progression is finally in our reach and the trickle down to those living, and dying with this is starting to happen. and so continue i shall to help bring more change, more hope and the care we all deserve πŸ™πŸΌ
32 476 April 2018

@ladydizebra

ladydizebra
#cannadifyi🌈 the more you know… or don’t
...
this is another natural way to deal with depression ...
if you are going to eat your shrooms, you must chew them extremely well to have a nice even flow all day long as was explained to me by #medicinemanwerd
thats specially true if your metabolism is already fast.
...
#mmw has been right on every level. his guidance has been priceless.
...
i am microdosing #psilocybinmushrooms for several reasons. #depression #chronicpain #eds #neuropathy #ms #spasms ...
because of my #dysautonomia i have very low blood pressure and shrooms as well as i’m strains of cannabis can lower blood your pressure.
know your body and know yourself.
you are your own best doctor.
0 5 36 minutes ago

@experiencingem

experiencingem
Fast facts 6:

it’s crazy how many people actually have postural orthostatic tachycardia syndrome, now if they are diagnosed or not that is a different story. on average 1 in 100 teens are diagnosed each year and impacts 1-3million americans. if you are lucky you may just find one maybe two others in your area who also have the condition. πŸ“Έ2: sarah craig photography
1 6 48 minutes ago

@thespooniecorn

thespooniecorn
[caption reads:] hi guys.
i know i haven't updated in quite a while, and i'm really sorry. i promise to respond to the comments on my last post soon, and i can't tell you how much i appreciate them ♥️
but for now, i have an interesting, but not brilliant update.
so right now i am writing this from hospital, where i have been for the past 15 hours.
i'll go into a full in-depth description tomorrow, but essentially, i have a fever, a mystery infection (meaning extremely high white blood cells), a resting heart rate of 113bpm, and a moving (by moving i mean literally just gesturing) heart rate of 132 to 140bpm.
i've been put on really strong iv antibiotics, and i have at least one dose left, so they're keeping me overnight.
i'm also being seen by a cardiac team sometime tomorrow, so we'll see how that goes.
it's pretty sucky right now, but on the plus side, my cannula is pink and purple sooo... 🀷
hope you guys are doing ok, and i'm sending you all love ♥️ xx [caption ends]
{image description: a white background with light grey text reading; health update part 1, please read below}
2 8 48 minutes ago

@daisynorrab

daisynorrab
Photo is #tbt it's been a difficult week & it's not even wednesday yet. i have to start a medication i'm dreading i'll have a reaction to but need to take for #pots & also being s*****d over by disability & have to jump through a bunch more hoops of paper work, phone calls, ect. praying for good news of some sort πŸ‘ ~
#eds #chronicillness #pots #dysautonomia #raynauds #ehlersdanlossyndrome #autoimmunedisease #chronicloveclub #staystrong #medicalzebra #spoonie #masscell #mcas #advocate
#zebrastrong #themighty #mightytogether
#healthjourney #invisibleillness #chronicpain #scoliosis #smilethroughthepain #zebrawarrier #potssyndrome #disability
0 10 59 minutes ago

@dollihopwell

dollihopwell
I am really not so well right now i'm struggling with everything so resting as much as i can but definitely not up to being my normal glamorous self as you can see by my picture. my ehlers danlos and pots syndrome are a very hard and difficult path life has chosen to put me on and it gets harder ever day #eds #heds #hypermobilityehlersdanlossyndrome #ehlersdanlossyndrome #ehlersdanlostype3 #chronicillness #chronicpain #invisableillness #cfs #potssyndrome #exhausted #inpain #fighter #neverstopfallingover #connectivetissuedisorder#tmj #tmjpain #tmjdisorder
0 3 1 hour ago

@rolling_stoned_mag

rolling_stoned_mag
At #rsmhq rolling s****d mag hq
#mymagicgarden #zen with #greencrackhead #witchyweedwoman relaxing with a bowl #nug with #terpsauce it was some medicine from @terrymarlenereid1956 thank you very much it went such a long way πŸ’žπŸ’–πŸ’ž
i am also experimenting #r&d #cannar&d with micro dosing #psilocybinmushrooms #drdi #naturalhealer #depression and other chronic conditions #eds #mthfr #ms ... ...
2 13 1 hour ago

@activelyautoimmune

activelyautoimmune
I’ve spent the night in the bathroom, removing my indewelling but then needing to isc. i felt so alone with my pain. but i thought of others in the world who may also be in their bathroom struggling with bladder or b***l issues. it can be hard to put into words what we go through, what our normal is. so i’m sharing this poem i wrote whilst sitting on my p*e pad, in tears, self catheterising. because we aren’t alone, even though it can feel a very lonely place to be 🚽

the pain brings tears to my eyes
i’m breathing hard to relax, big sighs
my body fights me holding on
spasms gripping lasting too long
finally it starts to drip yet no relief
finishes already, way too brief
the pain and nausea continue to stay
and thats only my first of the day
24 231 1 hour ago

@redhead_natural_insta

redhead_natural_insta
Some days and nights... are such a struggle. sometimes i'm jealous of the perfectly healthy people who abuse their bodies with poor eating habits and choices, never exercising while i burst my bum to take care of my body and it will never be well. but in all truth and honesty through my bouts of "it's not fair" and jealousy, i know i am a stronger person bc i won't give up. i am a stronger person bc i choose the difficult things that take a little extra time, healthy foods, meal preps, going to the gym,and i do them despite my physical struggles and i do them for my damaged body. i could ask wot your excuse is...but i don't have time to hear many. #strugglingtoday #chronicpain #npcbikini #bikinifit #bikinifitness #redhead #instafit #fitness #motivation #eds #elhersdanlossyndrome #congenitalheartdefects #arthritis #epilepsy #pancreatitis #sphincterofoddi #transformedmigraines #asthma #awarenessribbons #keepswimming #feelingsorryformyself #justkeepmoving #keepdoing #keeplifting #determination #eathealthy #peptalk "nice !!! πŸ’– follow me @redhead_natural_insta for more πŸ’—
❀ update new pictures everyday!
βž–
πŸ“Œ tag someone to make their day better.
❀️ double tap & tag your friends below‡
#redheadproblems #redheadadventures #redheadswhotravel
0 0 1 hour ago

@streetelementsglobalmedia

streetelementsglobalmedia
Street elements is the hottest urban hip hop magazine in the nation! produced quarterly it is know for its straight forward rawness and uncanny ability to tell the truth on untouched subjects within hip hop, the urban community and society as a whole. our goal is to enlighten our readers on every element of urban street life – not to glorify it. #streetelements #magazine #mediacompany #urban #hiphop #truestories #music #legends #pimps #newartist #hiphophonors #rudeboygraphics #bet #vh1 #popnews #everydaynews #tmz #wshh #eventpromo #paidpromo #advertising #marketing #socialcontent #wild941 #tbc #eds #gameroom #fortheculture
1 15 1 hour ago

@catriona_mk

catriona_mk
Day 296: 23/10/18 #photoaday


a lot of last minute promise ceremony prep this morning before brownies later. including getting lots of badges sewn on gilets to present to the new girls once they make their promise. i was in uni all afternoon then i go straight to brownies so knew i had to get everything finished this morning. i love that we do quite a traditional promise ceremony in my unit, once the girls have made their brownie promise we present them with their badge gilet with their first few badges sewn on, and also their district necker. they also get their certificate, and bag with their handbook and badge book. they always look really proud to finally be an official brownie! invested 5 new girls tonight and have another 3 to invest after the half term 😊 our unit is almost at capacity now which is fab, but i’m also a bit sad because i hate having to put girls on a waiting list instead of saying they can start straight away 😭 in other news my hip was feeling a bit better today, but it’s still not back to baseline, probably because it’s suddenly got really cold. but apart from that i’ve had a relatively low symptom day which was amazing. so i did all the things which i’ll probably pay for tomorrow but got to make the most of the good days #pacingfail #brownies #brownieleader #girlguiding #volunteering #ehlersdanlossyndrome #eds #connectivetissuedisorder #raredisease #posturalorthostatictachycardiasyndrome #pots #hypotonia #chronicpain #chronicfatigue #chronicillness #chronicillnessblogger #disabilityblogger #lifestyleblogger
0 6 1 hour ago

@streetelementsglobalmedia

streetelementsglobalmedia
Super dope @thebobbyburns x @ninas420life | street elements is the hottest urban hip hop magazine in the nation! produced quarterly it is know for its straight forward rawness and uncanny ability to tell the truth on untouched subjects within hip hop, the urban community and society as a whole. our goal is to enlighten our readers on every element of urban street life – not to glorify it. #streetelements #magazine #mediacompany #urban #hiphop #truestories #music #legends #pimps #newartist #hiphophonors #rudeboygraphics #bet #vh1 #popnews #everydaynews #tmz #wshh #eventpromo #paidpromo #advertising #marketing #socialcontent #wild941 #tbc #eds #gameroom #fortheculture
0 11 1 hour ago

@streetelementsglobalmedia

streetelementsglobalmedia
Damn shaq #shaq street elements is the hottest urban hip hop magazine in the nation! produced quarterly it is know for its straight forward rawness and uncanny ability to tell the truth on untouched subjects within hip hop, the urban community and society as a whole. our goal is to enlighten our readers on every element of urban street life – not to glorify it. #streetelements #magazine #mediacompany #urban #hiphop #truestories #music #legends #pimps #newartist #hiphophonors #rudeboygraphics #bet #vh1 #popnews #everydaynews #tmz #wshh #eventpromo #paidpromo #advertising #marketing #socialcontent #wild941 #tbc #eds #gameroom #fortheculture
0 10 1 hour ago

@streetelementsglobalmedia

streetelementsglobalmedia
Ladies is it true ? street elements is the hottest urban hip hop magazine in the nation! produced quarterly it is know for its straight forward rawness and uncanny ability to tell the truth on untouched subjects within hip hop, the urban community and society as a whole. our goal is to enlighten our readers on every element of urban street life – not to glorify it. #streetelements #magazine #mediacompany #urban #hiphop #truestories #music #legends #pimps #newartist #hiphophonors #rudeboygraphics #bet #vh1 #popnews #everydaynews #tmz #wshh #eventpromo #paidpromo #advertising #marketing #socialcontent #wild941 #tbc #eds #gameroom #fortheculture
0 7 3 hours ago

@streetelementsglobalmedia

streetelementsglobalmedia
Street elements is the hottest urban hip hop magazine in the nation! produced quarterly it is know for its straight forward rawness and uncanny ability to tell the truth on untouched subjects within hip hop, the urban community and society as a whole. our goal is to enlighten our readers on every element of urban street life – not to glorify it. #streetelements #magazine #mediacompany #urban #hiphop #truestories #music #legends #pimps #newartist #hiphophonors #rudeboygraphics #bet #vh1 #popnews #everydaynews #tmz #wshh #eventpromo #paidpromo #advertising #marketing #socialcontent #wild941 #tbc #eds #gameroom #fortheculture
0 5 3 hours ago

@streetelementsglobalmedia

streetelementsglobalmedia
Street elements is the hottest urban hip hop magazine in the nation! produced quarterly it is know for its straight forward rawness and uncanny ability to tell the truth on untouched subjects within hip hop, the urban community and society as a whole. our goal is to enlighten our readers on every element of urban street life – not to glorify it. #streetelements #magazine #mediacompany #urban #hiphop #truestories #music #legends #pimps #newartist #hiphophonors #rudeboygraphics #bet #vh1 #popnews #everydaynews #tmz #wshh #eventpromo #paidpromo #advertising #marketing #socialcontent #wild941 #tbc #eds #gameroom #fortheculture
0 6 3 hours ago

@streetelementsglobalmedia

streetelementsglobalmedia
#citygirls #freejt street elements is the hottest urban hip hop magazine in the nation! produced quarterly it is know for its straight forward rawness and uncanny ability to tell the truth on untouched subjects within hip hop, the urban community and society as a whole. our goal is to enlighten our readers on every element of urban street life – not to glorify it. #streetelements #magazine #mediacompany #urban #hiphop #truestories #music #legends #pimps #newartist #hiphophonors #rudeboygraphics #bet #vh1 #popnews #everydaynews #tmz #wshh #eventpromo #paidpromo #advertising #marketing #socialcontent #wild941 #tbc #eds #gameroom #fortheculture
1 5 3 hours ago