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Search result for #spoonielife
2 24 2 hours ago
Many people with chiari experience swallowing difficulties – hard time swallowing or often swallowing the wrong way. the pressure on the cerebellum and nervous system affect involuntary reflexes.
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#chiariawareness #chiarimalformation #braintoobig #spoonielife #spooniewarrior #invisibleillness #spooniecommunity #chronicallyfabulous
0 2 27 minutes ago
When i was first diagnosed with multiple sclerosis i wanted to be one of those strong ones. i wanted so badly to be one of the ones that could fight my way through it, that could be a huge inspiration to other people, that could make it look like it was a fight that i was strong enough to win. i have been a fighter my entire life. but now everything that i have known for 41 years is over. multiple sclerosis won. when i don’t have a purpose anymore i no longer know what to fight for.
how do you find a new purpose when you’re not physically able to do anything that you enjoy? how do you find a new purpose when you’re no longer able to do the things that you loved more than anything else for over 20 years? i don’t know the answers to these questions but i still want to fight, i still want to inspire, i still want to be one of the strong ones. i really hope i can find the answers soon. #mswarrior #multiplesclerosis
3 3 20 minutes ago
My full diagnosis...
ehlers danlos syndrome
pots (a heart disease normally linked to eds)

and now tears in my costal margin (the cartilage connecting the ends of my ribs) ••••
this newest medical diagnosis explains the pains i have had for 5 years with no explanation. ••••
it has been a long journey to find out why i’ve been having rib pains and we have been to many doctors with no answers.
•••• unfortunately this will continue but, i now know how to handle it and what it is.
#chronicillness #potssyndrome #ehlersdanlossyndrome
#spoonielife #chronicpain #zebra #diagnosis
1 29 Yesterday
After the #migrainepose debacle, it’s all the more important to see and share accurate depictions of migraine. in this article (link in bio), we share a few #migrainemoment film contest finalists and discuss the themes of their films. β €
2 110 3 days ago
When the pain gets too overwhelming and all you want to do is scream at the top of your lungs!! my migraines have been unbearable, the pain is torture and i can’t take it, it’s all too much. i keep asking myself what did i do wrong and why can’t i get better. when there is no-one else to blame we start to blame ourselves πŸ˜“ right i’m off to find the nearest pillow, it’s that time to scream again!! what do you do in these situations, when you’ve used all your resources and you’re still being tortured by your pain? πŸ’œ
7 75 6 hours ago

@happybaglife

happybaglife
πŸ’œ it’s okay to say no to plans, it’s okay to do nothing all day. sometimes we need it!

πŸ’©i remember always feeling like i had to participate in everything. never wanting to say no because i didn’t feel well, which resulted in me stressing my body even more and feeling worse. so now i listen to my body and if it needs some extra rest that’s what we do.

πŸ‘‡πŸ½ can anyone else relate? let’s talk about it in the comments below.

#happybaglife #nocolonstillrollin #ulcerativecolitis #ostomate #invisibleillness #ulcerativecolitisawareness #crohns #spoonie #stoma #ileostomy #ileostomybag #ileostomylife #ulcerativecolitisfighter #spoonielife #spooniewarrior #ostomates #ibd #positivevibes #jpouch #jpouchlife #getyourbellyout #chronicillness #crohnsdisease #ibdgang #pouchitis #ostomy #ostomyawareness #ostomybag #ostomylife
0 3 3 minutes ago

@justliveblognl

justliveblognl
Fashion tip: shop local “ik verbaas mij tegenwoordig over de lege straten en leegstaande panden in de stad en in het dorp. de meeste mensen begeven zich veelal in de digitale winkelstraten en ik moet zeggen; ik heb er niets mee. een treurig kleurenpallet, eenzijdig aanbod en soms gebrek aan creatieve looks. mijn motto is dan ook: shop local!”
onze blogger ankie, @ankie_stuijts , shopte weer eens offline en vertelde haar ervaringen en tips.
βœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈ
βœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈβœ–οΈ
#justliveblognl #blog #blogger #nederlandseblogger #medicijnen #chronischziek #chronischepijn #chronicfatigue #chronischevermoeidheid #chronicpain #chronicillness #chronicallyill #spoonie #spoonielife #spoonieproblems #positief #butyoudontlooksick #motivatie #mindset #sickgirl #onzichtbaarziek #shoppen #shopping #offline #brabant #fashion #shoplog
0 6 5 minutes ago

@april_love_lily_grace_paisley

april_love_lily_grace_paisley
So the past few weeks have been tough for me, family stress has pushed many of my symptoms out of control. for those who have stuck by me during this rough patch i just want to say thank you. thank you for following my account, for the prayers, well wishes and love.
even though i’m still in the middle of this stressful time i am filled with hope now that i have diagnosis’s. that we can now find the right treatment, i can adjust to the new diet and things will improve.
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#fibromyalgia #arthritis #hasimotosdisease #asthma #chronicurticaria #angioedema #mutiplechemicalsensitivities #degenerativediscdisease #migraine #lightsensitivity #soundsensitivity #autoimmunedisease #adhd #ptsd #majordepressivedisorder #invisibleillness #chronicpain #chronicillness #idontlooksick #autoimmunewarrior #fibromyalgiawarrior #hasimotoswarrior #spoonie #spoonielife #spooniethanks
0 1 5 minutes ago

@our_life_with_crohns

our_life_with_crohns
*all questions please send via dm only βœ“this page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
βœ“please follow like the posts most importantly give your support to the questions/ person needing advice
stay strong πŸ’ͺπŸ’œ #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease #crohnssucks #colitis #colitisulcerosa #arthritis #arthurmemes #hatebeingsick #ostomy #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
0 2 9 minutes ago

@our_life_with_crohns

our_life_with_crohns
*all questions please send via dm only βœ“this page is a place where you can ask questions no matter how embarrassing all posts are anonymous please support give advice by commenting on posts
βœ“please follow like the posts most importantly give your support to the questions/ person needing advice
stay strong πŸ’ͺπŸ’œ #crohnswarrior#ngtube#autoimmune#crohnsfighter#autoimmunedisease #crohnssucks #colitis #colitisulcerosa #arthritis #arthurmemes #hatebeingsick #ostomy #chronicpain#chronicfatigue#chronicillness#invisibleillness#crohnslife #ulcerativecolitis#remicade#humira#fatigue#colonoscopy#anxietywarrior#spoonie#hospital#stomaawareness#crohnsdisease#colostomy#crohnsawareness#spoonielife
0 5 9 minutes ago

@headcandyrobin

headcandyrobin
When i was first diagnosed with multiple sclerosis i wanted to be one of those strong ones. i wanted so badly to be one of the ones that could fight my way through it, that could be a huge inspiration to other people, that could make it look like it was a fight that i was strong enough to win. i have been a fighter my entire life. but now everything that i have known for 41 years is over. multiple sclerosis won. when i don’t have a purpose anymore i no longer know what to fight for.
how do you find a new purpose when you’re not physically able to do anything that you enjoy? how do you find a new purpose when you’re no longer able to do the things that you loved more than anything else for over 20 years? i don’t know the answers to these questions but i still want to fight, i still want to inspire, i still want to be one of the strong ones. i really hope i can find the answers soon. #mswarrior #multiplesclerosis
3 3 20 minutes ago

@ninabeanaboo

ninabeanaboo
Happy fall!! my favorite πŸπŸ‚πŸ₯§β˜•πŸŽƒ #autumn #fall #happyfall #favoriteseason #spoonielife
0 5 24 minutes ago

@chronically_illin

chronically_illin
I know i have been posting alot of sayings on here lately, but its one thing that makes me feel like i'm not alone in this, besides the cic. you guys are awsome and if me posting theses wordy pictures helps you in some way, then its worth it. i hope you are having a good day and remember you are not alone. πŸ’–
#neveralone #neverstopfighting #keepgoing #keepmovingforward #everythingwillworkout ##chronicillness #chronicallyill #chronicillnesslife #chronicillnessawareness #chronicillnesswarrior #invisibleillness #invisibleillnessawareness #spoonie #spoonielife #spoonieproblems #spoonielife #spooniestrong #givemeyourspoons #butyousontlooksick #dysautonomia #mcas #eds #potssyndrome #mastcellactivationdisorder #posturalorthostatictachycardiasyndrome #elhersdanlossyndrome #justkeepswimming
0 5 24 minutes ago

@tara.swagerty

tara.swagerty
Many people with chiari experience swallowing difficulties – hard time swallowing or often swallowing the wrong way. the pressure on the cerebellum and nervous system affect involuntary reflexes.
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#chiariawareness #chiarimalformation #braintoobig #spoonielife #spooniewarrior #invisibleillness #spooniecommunity #chronicallyfabulous
0 2 27 minutes ago

@spooniebehindthesmile

spooniebehindthesmile
Day 22, september positivity challenge;
what do i crave?? i looked at this challenge this morning and didn’t actually have an answer to it - my first thoughts were some days without pain, some restful sleep, you know - the usual spoonie requests.
but then, my beautiful friend @karloslea gave me a gift...a box of tea bags!! “tea bags??” you shout - but these aren’t just any type of tea these are special they’re @yorkshiretea biscuit brew and they’re awesome!!! 🀀
they smell and taste like tea and biscuits πŸͺ if you like a good cuppa like me then you’ve gotta try them.
since i tried my first cup this afternoon it’s all i’ve been craving!! plus as my friend and i agreed, if the tea can get rid of the craving for biscuits then maybe a good weight loss aid πŸ˜†πŸ‘ŒπŸΌ
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#postivitea #postivitychallenge #septemberchallenge #livingmybestlife #cravings #satisfied #biscuitbrew #biscuits #spoonielife #spoonieblogger #chronicillnessblogger #arthritis #fibromyalgia #ehlersdanlossyndrome #bloggerstyle #bloggerstribe #autumnalafternoon #saturdayvibes #instablogger #spooniesofinstagram #instadaily #postoftheday
2 6 28 minutes ago

@endosisterx

endosisterx
This is one of the many faces of #endometriosis this is me zonked out on the way to a family event trying to function through a flare. pain is not the normal and i refuse to believe it is. 8 more days till excision πŸŽ—πŸ’› .
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#endometriosis #endometriosisawareness #endosisters #endosistersunite #endowarrior #spoonie #spoonielife #cronicillness #womenshealth #ttccommunity #pcos #pcoswarrior #infertilityjourney #endojourney #endowhat #chronicillnessblogger
1 11 29 minutes ago

@dddwarrior

dddwarrior
Best visual i can give for the days my head literally only feels attached by a single thread. i wish my problems were as simple a solution as a chiropractor, but i am not even allowed to go near one due to my injuries. i can say that light stretching in the morning def helps with less stiffness throughout the day. hoping to start p.t. again soon. #ctscans for #thorasic and #lumbar today to check my fusion healing process and to check on further damage to the levels left untouched during surgery. πŸ€žπŸ»πŸ™πŸ“Ώ #spoonie #spooniewarrior #dddwarrior #spoonieproblems #spooniestrong #spoonielife
1 6 37 minutes ago

@soulful_herbals

soulful_herbals
0 9 46 minutes ago