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Search result for #spoonielife

@thechrillness

thechrillness
Step right up/// .... to the wheel of #chronicpain!! no but seriously, it is so hard to wake up in the morning and not know what you’re going to get. will it be pain? will it be fatigue? or will today be a (relatively) “good day”? who knows when you have #lymedisease or #chronicpain or any other #chronicillness. it makes it impossible to make (and keep) plans, to keep friends in your life and to just get sh*t done!! all we can do is our best, right? how do you survive?

frustrated,
@laura_macleod
1 0 in a minute

@sickchickkie

sickchickkie
My home away from home for the last few days! lol...cant wait to get home now though!...back has really started to ache and body just knows it's nearing it's time! lol...still so peaceful though! πŸ•πŸŸπŸ€—πŸ’œ #fibro #fibrowarrior #chronicpain #fibromyalgiaawareness #spooniestrong #butyoudontlooksick #chronicpainwarrior #spoonie #spoonielife #fibromyalgiaawareness #mentalillness #everythinghurts #spoonieproblems #fibrofighter #me #copd #depression #anxiety #migraine #chronicillness #fibromyalgia #exhausted #tired #spoonies #chronicillnesswarrior #pain #purpleribbon #fibrosucks #life #mylife
0 1 in a minute

@stircrazyspoonie

stircrazyspoonie
Fueling up before today's #ivig infusion with my favorite go-to #breakfast #sandwich: deli sliced ham and cheese on a mini croissant, baked at 350 degrees (farenheit) until the cheese is melted and the sandwich is warmed through. it also makes a simple and easy #lunch as well. #chronicillness #chronicpain #spoonielife #spoonie #spoonielifehack #cooking #cookingwithchronicillness #easymeals #breakfastsandwich #orlunch
0 2 2 minutes ago

@reneeincancerland

reneeincancerland
Yes!
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i finally figured out that when the weather changes, it totally messes with all the scar tissue in my brain area which in turn causes a migraine on day 1 then leads to massive neck and shoulder tension. so i have figured out that muscle relaxer is so much more helpful then pain pills.
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what problem have you figured out lately?
1 3 6 minutes ago

@spoonieyogatribe

spoonieyogatribe
Woohoo! congrats on making it to day 1️⃣5️⃣ of #spoonieyogaeveryday πŸŽ‰ we’re halfway through!
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today’s pose πŸ”»
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bakasana - crow pose. all of these variations are pretty challenging! so please don’t feel like you’re “slacking” if you don’t choose the traditional variation. this pose is hard! and no matter which variation you choose, you’ll still be building strength in your whole body πŸ’ͺ🏼✨
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alignment tips πŸ”»
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βœ… try to snuggle the knees up toward your armpits. as close as you can get them.
βœ… really activate your core. pull the belly button in and think about evenly rounding the back body the way we do in cat pose. βœ… fan the fingers wide and press evenly into all the knuckles. even if you’re doing the supine variation, activate your hands and imagine pushing the ceiling away from you.
βœ… i personally like to practice this pose in “rounds” - hold for a few breaths, rest, then practice again for a few breaths. do what feels right to you!
β €β € try any of the variations above or create your own! this challenge is all about finding what feels good for your own unique body. if you listen to your intuition, you’ll never be wrong πŸ™πŸΌπŸ’• remember to tag me in your pose photos so i can see them! @spoonieyogatribe
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join me for 30 days of yoga! here’s how:
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1️⃣ follow @spoonieyogatribe and @sleepysantosha on instagram.
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2️⃣ repost the flyer to your feed or story and tag your friends to join us!
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3️⃣ post your variation of the daily pose using the hashtag #spoonieyogaeveryday πŸ‘ˆπŸΌ don’t forget to also tag me @spoonieyogatribe
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4️⃣ make sure your profile is public so that i can see your posts!
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5️⃣ create your own personal hashtag so that your posts are easy to find at the end of the challenge (e.g. #spoonieyogaeverydayrachel). this will help me decide on winners and will be fun for you to look back on your journey ☺️
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6️⃣ have fun and honor your body!
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1 9 10 minutes ago

@thegirlwhosalwayssick

thegirlwhosalwayssick
I love this πŸ’˜
all the time i see posts on social media, telling me to live my life to the fullest everyday. and often with this illness, that just isn’t possible. it’s hard enough on the bad days when you’re stuck in bed, to deal with the guilt of ‘not living’. instead, i need to remember that it’s okay for me to have bad days. that doesn’t make me a failure. just because today for instance, i haven’t got dressed, lay in bed all morning and have only made it to the sofa, doesn’t mean that i have failed to make my day count. instead i made my day count in a way that benefits me. i am taking a day to rest after a long day out yesterday, so that i can have the energy to do the things i want to do tomorrow. that is how you make the days count as a chronic illness sufferer. s***w what society, social media and even your nearest and dearest say. you do what you need to, to make your own days count πŸ’•πŸ’• .
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#fibromyalgia #fibrowarrior #spooniesisterhood #spooniesunite #chronicillness #chronicpain #chronicfatigue #spoonie #spoonielife
1 5 11 minutes ago

@spooniesistershop

spooniesistershop
“undiagnosed but stubborn” pretty much sums up the last 6 years of my life. while i have accumulated various diagnoses (gastroparesis, may thurner syndrome, central sensitization, chiari malformation, chronic migraine, dysautonomia, hyperparathyroidism, cholecystitis, etc), none of these account for my most prominent, debilitating symptom: horrific chronic abdominal pain. and, we don’t have an explanation as to why i have several of those symptoms (gp, cs, migraines, dys)
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every spoonie was undiagnosed at some point in their journey. that terrifying period of the unknown might have only lasting a couple days, or weeks, or months. but for many, it takes years. it takes grit to keep self-advocating, seeking out doctor after doctor after doctor, and not giving up. i’m currently on doctor number 47. so, this hoodie is for all my fellow #undiagnosed spoonies who are too stubborn to quit. too stubborn to accept the repeated “well, everything looks normal” speeches. too stubborn to ever stop seeking answers.βœŒοΈπŸ’•
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#stubborn #nevergiveup #spoonie #spoonielife #spoonies #spoonie #spoonieproblems #spoonieprobs #wegotdys #chronicillness #chronicpain #chronicpainwarrior #diagnosis #chronicillnesswarrior #butyoudontlooksick #justkeepswimming #spooniemom #spooniesupport #spooniewarrior #spooniesisters #awareness #gastroparesis #dysautonomia #centralsensitization #chiarimalformation #abdominalpain #invisibleillness #hypothyroidism #chronicmigraines @etsy @printedmint
0 11 19 minutes ago

@marinazivkovic8731

marinazivkovic8731
Im eating some healty fats.
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cuz my mind and my body are just craving them.
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no its not organic. but folks, who can afoird organic all the time. .
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besides i dont know if there is such a thing as organic #coconut in #europe .
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i mean they all look the same, smell the same and if they are bad fron the inside they are the same bad in #tommy as in #alnatura or #edeka bio section.

im having a very rugh day i have been on a low f*t craze for 3 days now and am feeling extremely cold and sheaky. maybe its some kind of detox i dont have a clue.
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but it sure doesnt feel fun.

#mygoto #healthyfats #avocadoπŸ₯‘ #coconut #cold #shaky #nofun
#cravings #brainfood #f*t #highfat #naturalfats #spoonielife #butyoudontlooksick #pain #anxiety
0 5 20 minutes ago

@lifeofthesickandbeautiful

lifeofthesickandbeautiful
I'm not suffering from any pain today (yay) but my fatigue is absolutely crippling. it's taking way too long to type this. i barely moved any part of my body this morning, i couldn't even hold a conversation with poor ginge. not being able to raise your own arms and being told it's psychological is obscene. i'm perfectly happy and want to be out in the world. today is going to be tough. for my latest project please see the link in my bio ;) #mecfs #myalgicencephalomyelitis #millionsmissing #chronicillness #fatigue #invisibleillness #millionsmissinguk #invisibledisease #spoonie #spoonielife #awareness #dontquit #mecfswarrior #invisibledisability #invisibleillnessawareness #butyoudontlooksick #canyouseemenow #notalldisabilitiesarevisible #meaction #timeforunrest #inspire #instalike #followers #comment #picoftheday #instapic #empoweringwomen #queen #loveyourself #behappy
0 7 21 minutes ago

@ligressy

ligressy
Not a sad post-! so as you all likely know i have lots of anxiety and such from pain. just wanted to take a second to thank @nakedwithanxiety and @slippinonspoons for great feeds that help some days remind me it’s ok. not being paid or anything but if you need a boost they may be a good follow recommend πŸŒˆπŸ’˜πŸ‘Œ//#anxiety #anxietyhelp #anxietysupport #invisibleillness #staystrong #staypositive #spoonielife #spooniesupport
0 4 21 minutes ago

@lunyluna

lunyluna
Last night was hard, something i don’t talk about often is my ptsd. it’s the one thing i mentally struggle with the most, especially at night. i wakeup in cold sweats and utter panic, trying to calm my shaking down, only to wake up in the same state a few hours later. ptsd is incredibly hard, but i’m making progress which is what matters🌸
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#❀️ #health #chronicpain #chronicpainwarrior #beauty #chronicpainawarness #chronicillness #invisibleillness #chronicpainsurvivor #endurance #survive #invisibleillnessawarness #fatigue #disability #mentalhealth #spoonie #spoonielife #mentalhealthawareness #spoonieproblems #cfs #pain #chroniclife #spooniewarrior #spooniestrong #smile #happy #disabledandcute #ptsd #freshstart #painwarrior
0 27 29 minutes ago

@functionalish

functionalish
2 16 31 minutes ago

@monifaheds

monifaheds
0 5 38 minutes ago

@spondy_chrony_mummy

spondy_chrony_mummy
First infliximab infusion this morning, all went ok and no bad reactions so far, just a bit tired. the doctor also drained another 100ml fluid out of my right knee, so a couple days rest then hopefully movement and mobility will be much improved 🀞🏻
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infliximab (or remicade) is a biological drug, used to treat my crohn’s disease and the ankylosing spondylitis. it is an anti-tnf, it targets a protein in the body called tnf-alpha. tnf-alpha is naturally produced by the body to help fight infections, by temporarily causing inflammation in the affected area. over-production of tnf-alpha leads to chronic inflammation, where the body effectively fights inflammation with inflammation and is in a continual and neverending battle with itself! hence the swelling, pain, fatigue... infliximab binds to the tnf-alpha to prevent it overproducing. however this also affects the body’s ability to fight infection. -

this is the third biologic i have tried and the last option that treats both as and crohns so i am hoping and praying that this works πŸ™πŸ»πŸ’œ
5 21 40 minutes ago

@monifaheds

monifaheds
0 5 41 minutes ago