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Search result for #suicidedisease
This is what trigeminal neuralgia looks like. going to the er as soon as my parents get home.
#trigeminalneuralgia #facialpain #chronicpain #invisibleillness #chronicmigraines #butyoudontlooksick #suicidedisease #neurology
110 68 August 2018
October 7th is trigeminal neuralgia awareness #trigeminalneuralgia #fighter #awareness #suicidedisease
3 40 3 weeks ago
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suicide disease is also known as trigeminal neuralgia (tn). tn is a chronic pain condition affecting the 5th cranial nerve, one of the most widely distributed nerves in the head. it has been said to be the most excruciating pain known to mankind. it normally affects more women than men & those over 50. i was only 30 when my symptoms began. the 10 months it took to get properly diagnosed was one of the worst periods of my life. so much so, i would mix painkillers w/alcohol on a daily basis just to pass out & pray that i would die from an overdose to finally be free from the pain.
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about a month after my dad died, i started having sharp, stabbing pains on the right side of my face. i saw my p*p only to be referred to an o**l surgeon. i did have issues with my teeth & ended up having full dentures by age 33, but knew this pain was different. it radiated from my eye, to my nose, to my ear, through my cheek & jaw & stopped just below my jawline. the pain would come in short bursts, feeling like electric shocks or a knife being stabbed into my face/head. then, the bursts began to get closer together. ultimately, i could go 24 to 48 hours straight with this pain, thus my thoughts of wanting to k**l myself. it's a pain beyond comprehension. i would cry uncontrollably (which made it worse), try to sleep (which made it worse), break things against the wall, scream & pound my fists into a pillow, drink, etc. every time a flare happened. i never knew when those would be or if they would last 2 min or 2 days. i saw my p*p several times, another gp, 5 or 6 urgent cares & 3 hospital ers before, of all people, the nurse checking me out of the er figured it out.
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upon seeing a neurologist, it took 5 min to diagnose the tn. anticonvulsant meds are used to treat the pain, thus the reason all of the painkillers never did a d**n thing. it took another 4 months to find the right combo of meds to control it.
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october 7, 2018 is national trigeminal neuralgia awareness day. age was a big factor why tn was never even considered for me. advocate for yourself! you know your body better than anyone! get a 2nd, 3rd or 4th opinion. don't let pain rule, ruin or even end your life.....
8 55 3 weeks ago
When my eye lids are fluttering, i was actually feeling pain. we had to take breaks during the makeup application due to #trigeminalneuralgia attacks. it felt like ice pick stabs.
31 147 October 2017
#tbt the day #truegritandgrace published and i had the honor of being interviewed on @megyntoday on @nbc to talk about living with chronic pain, resilience, the light inside us.
watch entire interview in my igtv 👆🏻
❤️shout out to anyone living with any kind of pain, day in and day out, and still keeping a smile on their face and still putting one foot in front of the other. you are not alone. you are a warrior! 💪🏻we got this!
sending you loads of love.
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#chronicpain #pain #crps #crpsawareness #suicidedisease #tgag #megyntoday #nbc #todayshow #interview #newbook #memoir #inspirationalpost #hope #faith #gratitude #scarsarebeautiful #newnormal #vulnerabilities #selfdevelopment #selflove #perfectisboring #empoweringwomen #chronicillness
212 487 August 2018
2 37 July 2018
244 1,072 last month
Why can’t we cure crps ? in just the last 50 years chicken pox
small pox
diphtheria
pneumonia
measles
whooping cough
meningitis
tetanus
jaundice
have all found a cure! what is the hold up? everyday americans abandon thousands of usa pennies!
unwanted, toss out, drop in the dark glove box, thrown into a change jar with other unwanted change or even the bottom of the underwear drawer. hundreds of thousands of #unwanted usa pennies. what if those same unwanted pennies went directly to #crps research? think about it? what if you found the luckypenny that finds the cure to crps the worlds most painful condition just laying on the street? a cure maybe? “hey bend over and pick up that penny it makes cents!” #penny #luckypenny guy #crps #crpsawareness #crpsresearch #everybitcounts #chronicpain #chronicillness #pain #nocure #findacure #suicidedisease will you help? #nocure #saved #onecent #uscent #warrior #positive #usa #americans
0 14 June 2018
June is almost over, therefore i need to get my ‘awareness’ post in. we have to keep bringing attention to this, so others can be diagnosed in a timely manner, and for there to be a cure. oh! and also for the hopes that one day the surgeries and necessary treatments will be covered under our healthcare. no one should suffer because of heir financial status. i was blessed to have two surgeries to manage this disease and be able to afford it. they gave me my quality of life back, even though i struggle some days. share this post please. #occipitalneuralgia #trigeminalneuralgia #suicidedisease #chronicpain #spoonies #awareness #support #fighters #nerves #neurological #facial #occipital #treatment #strength
1 23 June 2018

@aacasa

aacasa
Grattis kanada till legaliseringen! nu kan många smärtpatienters liv räddas. här i sverige kan vi tn-patienter bara hålla tummarna att läkemedelsföretagen släpper sitt järngrepp om rätten till vår hälsa, att de ska sluta försöka pumpa oss fulla med kemikalier som inte ens tar bort smärtan och vars bieffekter har fruktansvärda konsekvenser, och att de ska låta oss bestämma själva vad som funkar för att kunna leva ett normalt liv. #medicalmarijuana #trigeminalneuralgia #cbd #suicidedisease
5 29 3 days ago

@bellareneesmith

bellareneesmith
I wanted to show people that just because we look ok, doesn’t mean we are! much love to all my fellow trigeminal neuralgia warriors! #trigeminalneuralgia #trigeminalneuralgiaawareness #tn #turntheworldteal #pain #shock #burning #suicidedisease #electricshock #mvd #microvasculardecompression
1 46 2 weeks ago

@complextruths_prez_crps

complextruths_prez_crps
Crps has a way of slamming into your life like a wrecking ball. everything you thought you knew... gone. .
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if you were like me, you may have started this journey alone. scared out of your mind. you started reading.... #google and yep, you scared the c**p out of yourself. .
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#suicidedisease you read. then immediately you second guessed yourself and everything you knew about yourself. .
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you are still you. your life isn't over because you got a disease. yes, it hurts but you are fundementally you inside. because someone gave it a scary nickname means nothing. because your friends are leaving like leaves on a tree, you are still you. because you are scared to death, doesn't mean you are anyone else but you. .
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getting lost or scared doesn't change that, what changes that is how you grow from this -- so trust your gut and you'll do the right thing and make the right decisions. .
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visit my blog: https://complextruths.org/kristins_story/
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#complextruths #crps1name #crps #rsd #spoonie #invisibleillness #rsdcrps #pain #painmeds #chronicpain #invisibledisease #crpsawareness #foundation #you #trust #blogger #trustingod #trustyourself #burning
4 36 5 days ago

@fin.evergreen

fin.evergreen
Being mama’s emotional support animal is sure ruff!🐶 she said that cuddles makes her feel better so i work h*****n the job to cuddle 💪🏻the heck out of her!🐷
5 92 1 weeks ago

@michael_pankow

michael_pankow
I've been battling trigeminal neuralgia for almost 3 years now. unfortunately it is progressing as i remember reading that a gentle breeze or the wind could cause pain.two years ago i thought "no way! that sounds too bizarre to be true!" today was a windy day while i walked the dog and i was in so much more pain upon returning home. eating now also contributes to more pain. i'm already a chronic pain warrior having a connective tissue disorder called marfan syndrome so i guess i'm predisposed to dealing with pain. in the meantime i'll keep my art and guitar as a means of expression and pain management/distraction. i can't let the monster in my head and face win. sharing this post from my friend @roseylajefa_official ⚡msnbc news segment on trigeminal neuralgia - link in my bio
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#trigeminalneuralgia #ticdouloureux #suicidedisease #facialpaindisorders #headpain #facialpain #neuropathy #neuropathysucks #tnwarrior #tn #traumaticbraininjury #tbi #tbisurvivor #neverquit #nevergiveup #survivor
6 23 2 weeks ago

@grammaticallyso

grammaticallyso
If you’re looking for a sign to not give up today–this is it.
it’s world mental health day. this week has already been pretty exhausting for me. it’s also ocd awareness week (check out my blog at lymeislame.com for more on that), but i can’t sit by and stay silent.

the statement in this picture may not be something revolutionary, but it is true for each and every one of you. i know i’ve said it before, but it’s a message that always bears repeating.

i don’t currently have the ability to write at length about my mental health struggles, but they are a bigger part of me than anyone else knows (but they do not define me, and yours do/es not define you!), so i felt an obligation, as someone who’s run the gamut of mental health treatments and therapy for 16 years, to at least reach out and hopefully encourage one person, or let anyone know they’re not alone.

i’m not currently on psychiatric mediation, but that’s only because i was on it for a decade and my body did not respond (tried more meds and dosages than i can count right now), so i discontinued most, though i still regularly see my psychiatrist and i still am on one psych med as needed, and she’s a wonderful person with whom i’ve had a great patient-doctor relationship with since 2004.

but my point in stating the above is to highlight that while i approach things more naturally now (even though i have my emergency odt clonazepam for various reasons), doesn’t mean you should rule out meds as an option for you. yes, i think america is over medicated in general, but i also know, when used correctly, medication can drastically improve the quality of someone’s life, and even save it at times.

so there is no shame in taking medication for a mental health struggle you face. what would you do if you had a cold? a broken bone? diabetes? cancer? you’d go to the doctor and if they told you x medication could help y problem, you’d most likely at least give it a try. mental illness is just as real and valid as physical illness, and under-reported much of the time, for fear of society’s stigma surrounding mental illness.

if you need to talk, my dms are open. take care of yourselves in all ways, friends.
1 34 2 weeks ago

@lymeislame

lymeislame
If you’re looking for a sign to not give up today–this is it.
it’s world mental health day. this week has already been pretty exhausting for me. it’s also ocd awareness week (check out my blog at lymeislame.com for more on that), but i can’t sit by and stay silent.

the statement in this picture may not be something revolutionary, but it is true for each and every one of you. i know i’ve said it before, but it’s a message that always bears repeating.

i don’t currently have the ability to write at length about my mental health struggles, but they are a bigger part of me than anyone else knows (but they do not define me, and yours do/es not define you!), so i felt an obligation, as someone who’s run the gamut of mental health treatments and therapy for 16 years, to at least reach out and hopefully encourage one person, or let anyone know they’re not alone.

i’m not currently on psychiatric mediation, but that’s only because i was on it for a decade and my body did not respond (tried more meds and dosages than i can count right now), so i discontinued most, though i still regularly see my psychiatrist and i still am on one psych med as needed, and she’s a wonderful person with whom i’ve had a great patient-doctor relationship with since 2004.

but my point in stating the above is to highlight that while i approach things more naturally now (even though i have my emergency odt clonazepam for various reasons), doesn’t mean you should rule out meds as an option for you. yes, i think america is over medicated in general, but i also know, when used correctly, medication can drastically improve the quality of someone’s life, and even save it at times.

so there is no shame in taking medication for a mental health struggle you face. what would you do if you had a cold? a broken bone? diabetes? cancer? you’d go to the doctor and if they told you x medication could help y problem, you’d most likely at least give it a try. mental illness is just as real and valid as physical illness, and under-reported much of the time, for fear of society’s stigma surrounding mental illness.

if you need to talk, my dms are open. take care of yourselves in all ways, friends.
1 60 2 weeks ago

@vanisle.momma

vanisle.momma
I suffer from both trigeminal and greater occipital neuralgia...i’m done being silent about it. today is trigeminal neuralgia awareness day!
5 29 2 weeks ago

@em_rose922

em_rose922
5 years ago, my life changed forever. i woke up with what i thought was a tooth ache and a bad migraine. a few days pass and still the same pain. i see my dentist several times, two teeth are removed due to we thought it was the source of pain. but it still remains... several trips to specialists, ers, dentists and about 8 months later i'm diagnosed with trigeminal neuralgia and chronic migraines. medication was prescribed and several! they work for a short period and then the pain increasingly gets worse. a year passes and i had mvd surgery. i was so thankful to be completely pain free for two years. unfortunately, it came back on both sides of my face, it's rare, very rare apparently! back on medication and it's not working. so here i am five years later, but i'm still here!!! i have a strong faith and a will to live. i hope to find a cure or relief for this terrible disease someday. please keep all tn warriors and last survivors in your prayers! #trigeminalneuralgiawarrior #trigeminalneuralgiaawareness #chronicillness #faith #imasurvivor #suicidedisease #wearteal
8 27 2 weeks ago

@lindseythacker

lindseythacker
1 65 2 weeks ago

@maranda_maree

maranda_maree
1 3 2 weeks ago